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Genomics England - Secondary Data - PHE/NCRAS

Population Size

Not reported

Years

1985 - 2022

Associated BioSamples

None/not available

Geographic coverage

Not reported

Lead time

1-2 months

Summary

This dataset brings together data from more than 500 local and regional datasets to build a picture of an individual’s treatment from diagnosis. Available for patients diagnosed with Cancer (ICD10 C00-97, D00-48) from 1 January 1995 - 31 December 2019.

Documentation

av_patient
Patient information - demographics and death details.

av_tumour
Tumour catalogue and characterisation for all patients with registerable tumour. Table's anon_tumour_id is used to link treatment tables also available in NCRAS. One row per tumour (av* table specific anon_tumour_id), per participant at the point of registration of that cancer/tumour with NCRAS.

av_treatment
Tumour linked catalogue of treatments and sites that provided them for all patients with registerable tumour.

av_imd
The Income Deprivation Domain (IMD table) measures the proportion of the population experiencing deprivation relating to low income. The definition of low income used includes both those people that are out-of-work and those that are in work but who have low earnings.

av_rtd
Routes to Diagnosis: cancer registration data are combined with Administrative Hospital Episode Statistics data, Cancer Waiting Times data and data from the cancer screening programmes. Using these datasets cancers registered in England which were diagnosed in 2006 to 2016 are categorised into one of eight Routes to Diagnosis. The methodology is described in detail in the British Journal of Cancer article 'Routes to Diagnosis for cancer - Determining the patient journey using multiple routine datasets'.

cwt
The National Cancer Waiting Times Monitoring Data Set supports the continued management and monitoring of waiting times.

sact
Systemic Anti-Cancer Therapy (chemotherapy detail) data for cancer participants from NHSE covering regimens between 04/2012 and 08/2022. One row per chemotherapy cycle, per tumour (SACT-specific anon_tumour_id), per participant.

rtds
The Radiotherapy Data Set (RTDS) standard (SCCI0111) is an existing standard that has required all NHS Acute Trust providers of radiotherapy services in England to collect and submit standardised data monthly against a nationally defined data set since 2009. The purpose of the standard is to collect consistent and comparable data across all NHS Acute Trust providers of radiotherapy services in England in order to provide intelligence for service planning, commissioning, clinical practice and research and the operational provision of radiotherapy services across England. Data is available from 01/04/2009. The data is linked at a patient level and can be linked to the latest available av_patient table.

ncras_did
The Diagnostic Imaging Dataset (DID) is a central collection of detailed information about diagnostic imaging tests carried out on NHS patients, extracted from local radiology information systems and submitted monthly. The DID captures information about referral source, details of the test (type of test and body site), demographic information such as GP registered practice, patient postcode, ethnicity, gender and date of birth, plus data items about different events (date of imaging request, date of imaging, date of reporting, which allows calculation of time intervals.

lucada_2013
The National Lung Can

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

genome, DNA, DATA-CAN, genomics, data, Public Health England

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Cancer Tumour - Number of genomes

Not reported

Count

01 Jan 1970

Persons

Rare Disease Participants

Not reported

Count

01 Jan 1970

Persons

Cancer Germline - Number of genomes

Not reported

Count

01 Jan 1970

Persons

Cancer Participants

Not reported

Count

01 Jan 1970

Persons

Rare Disease - Number of genomes

Not reported

Count

01 Jan 1970

Provenance

Patient pathway description
Secondary care cancer pathways.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
17.0.0
Modified

08/10/2024

Distribution release date

30/03/2023

Citation Requirements
Genomics England

Coverage

Start date

01/01/1985

End date

30/12/2022

Time lag
Variable
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
READ, SNOMED CT, NHS NATIONAL CODES, ICD10, OPCS4, ODS
Format
Multiple Formats Available

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
1-2 months
Access request cost
Fees will be dependent on the type of access that is necessary. Raw data is not eligible for export. Summary-level data may be exported provided that it is approved through the Genomics England Airlock Process
Access service description

More information about the Genomics England Research Environment can be found here:

https://www.genomicsengland.co.uk/about-genomics-england/research-environment/ https://research-help.genomicsengland.co.uk/display/GERE/1.+The+Genomics+England+Research+Environment

Genomics England 100k participants have consented to longitudinal lifetime followup and recontact safely through our clinical network. BRST (Bioinformatics Research Services) are a team of bioinformatics who know the dataset inside out and provide consultancy projects on a case by case basis. Our network of clinical and medical experts can be made available on case by case basis. Researchers have the opportunity to work with our and access the GeCIP network who are a community of world-leading experts in specific cancers and rare diseases.

Jurisdiction
GB-GBN
Data Controller
PUBLIC HEALTH ENGLAND
Data Processor
GENOMICS ENGLAND

Dataset Types: Health and disease


Collection Sources: