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Blood Cancer Cardiff and the Vale Dataset (BCCV)
Population Size
Not reported
Years
2019
Associated BioSamples
None/not available
Geographic coverage
Not reported
Lead time
1-2 months
Summary
The dataset contains the details of patients who have visited a Myeloma clinic.
Documentation
All patients receiving systemic anti-cancer therapies in or funded by the NHS are covered by the dataset.
The data is from eFroms filled in during a patient visit in a Myeloma clinic.
Dataset type
Health and disease
Dataset sub-type
Not applicable
Keywords
Observations
Observed Node | Disambiguating Description | Measured Value | Measured Property | Observation Date |
|---|---|---|---|---|
Events | The dataset contains the details of patients that have blood cancer in Cardiff and the Vale. | 5000 | Palliative Day Care Events | 20 Jul 2021 |
Provenance
Source of data extraction
Electronic survey
Collection source setting
Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care - In-patients, Community
Patient pathway description
All pathways about prescribed systemic anti-cancer therapy.
Image contrast
Not stated
Biological sample availability
None/not available
Structural Metadata
Details
Publishing frequency
Other
Version
1.0.0
Modified
08/10/2024
Citation Requirements
Cardiff and the Vale Health Board
Coverage
Start date
01/07/2019
Time lag
1-2 months
Maximum age range
150
Follow-up
Unknown
Accessibility
Language
en
Controlled vocabulary
LOCAL
Format
SQL database table
Data Access Request
Dataset pipeline status
Not available
Access rights
Time to dataset access
1-2 months
Access request cost
Data provision is free from SAIL. Overall project costing depends on the number of people that require access to the SAIL Gateway, the activities that SAIL needs to complete (e.g. loading non-standard datasets), data refreshes, analytical work required, disclosure control process, and special case technological requirements.
Access service description
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdiction
GB-WLS
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
National Cancer Registry and Analysis Service (NCRAS)
Data Processor
SAIL Databank